tired.
Just got home, and I'm tired and wired. Got mega does of steroids after gamma knife.
So what we found, was another little tumor that was hiding, and we couldn't see it because of all of the swelling.
Fortunately, we zapped that guy, so that was a good thing.
The rim that was also found is tumor, so we treated 1/2 of that, and I will be going back on the 14th to treat the rest of it. The cavity has shrunk, but not enough for this to have been taken care of in one treatment.
The numbing shots were a bitch and hurt so bad. And then I could still feel him screwing this thing into my skull, so yea, that meant more shots and more pain/burning.
Once it was one it was ok.
Then this globe thing to take some measurements, then basically off in the ambulance to the MRI place. I of course was moving my legs around so we had to do a couple of the MRI's over. It figures!
Then back to Gamma Knife, and snap me in, or I should say lock me in.
And away we go.
I almost fell asleep during the thing, not like an MRI machine because no noise at all, and a little warm, made me kind of sleepy, (although that could have been from the two adivant I took as well?)
Then major does of steroids , again, and we just see how I feel tomorrow, prob tired, so I'll just lay low if need be.
One more treatment, then the next MRI will be in two months.
Gotta big fight on my hands, but I can do it!
Wednesday, June 30, 2010
Tuesday, June 29, 2010
OK. . . .
tomorrow is the day.
I'm still a little freaked out, but overall I feel good, I just want this over with.
I want to get my MRI in the am, and see how big the cavity is, and see if the "rim" is just that, a rim. no tumor please!
Saw the Eye Dr. yesterday, he said the optic nerve is getting better, but still no glasses, man my eyes are so tired and strained. I can't wait to get some glasses, funny huh?
I just really need the relief here with the eye thing.
other than that, I just don't know what else to say, I'm just trying to not think about any of this.
I'm still a little freaked out, but overall I feel good, I just want this over with.
I want to get my MRI in the am, and see how big the cavity is, and see if the "rim" is just that, a rim. no tumor please!
Saw the Eye Dr. yesterday, he said the optic nerve is getting better, but still no glasses, man my eyes are so tired and strained. I can't wait to get some glasses, funny huh?
I just really need the relief here with the eye thing.
other than that, I just don't know what else to say, I'm just trying to not think about any of this.
Sunday, June 27, 2010
Three. . . .
days and counting!
Can I pull off the Frankenstein thing or not?
It's my plan, but if I'm really freaked out once they screw this thing into my head I may not be able to do it.
I told Eric we have to take a few pics so I can put them on my facebook, for inquiring minds that want to know.
hmmmm
Can I pull off the Frankenstein thing or not?
It's my plan, but if I'm really freaked out once they screw this thing into my head I may not be able to do it.
I told Eric we have to take a few pics so I can put them on my facebook, for inquiring minds that want to know.
hmmmm
Thursday, June 24, 2010
The. . . .
nurse visit at the Gamma Knife went really well yesterday.
Karen is awesome, and she explained everything and took us on a little tour.
This way I have an idea of what to expect and if I had any questions could ask and so on.
She asked, "do you have any questions?" umm yes, will I be sedated? I sound like a druggy I know, but I am a little freaked out about my stylish hat that gets screwed into my skull, I guess that's their version of a SKULL CAP. uhh right!
So yeah, back to that whole process. . .
I come in at 6:30 am, and get to have an adivant, then I meet with Dr. C my neuro surgeon, who will put some numbing cream on my head, then some kind of numbing injections, that will burn, and cause bumps on my head, then she screws this thing into my head. , on the front part of course.. . .why do they put this contraption on you ask? so so when I go into the MRI machine, it has a way of giving them markers, so they can map and measure so they know where to direct the 200 laser beams. seriously!
Ok, so the Halo is on my head..(not the cute little oh look an angel halo) but a Frankenstein monstrosity, maybe after they put it on, I'll have to get really dramatic and walk with my hands in front me and say..MMMMmmm ( a girls got o have some fun, right?)
Ok, then they put me in an ambulance, and I go up to the hospital, hey they don't want me walking through the parking lot like that, I could draw attention, and yell help, look what they are doing to me!!, so then the MRI and then the little ride back down the hill, and there I wait for them to map out the big plan.
And oh, by the way, bring a little snack. . .I could be waiting quite a while for them to get their neuro surgeon, neuro physicist and Radiation Gamma Knife heads in agreement.
Ummm yeah lets get this right please it's my brain we are messing around with here!
Then, oh yeah the best part, they pop my head into the helmet things, and you are locked in with your head kind of suspended and it's kind of like an MRI machine except only the top of the head goes in, and no noise.
So I can bring a CD or she can play something that she has. . and the best part?? this only takes 20 minutes.
Then I rest and then go home and I'll be tired, but should be good to go the next day.
Now for those of you with inquiring minds and are asking well do they get everything, what exactly happens, and so on. . .
Well, we won't really know a lot of this until:
1) We have the MRI that morning to see how big the cavity it...my hope here? it's 3.5 cm or less, that way I don't have to do this again in three months. . .so that's what I'm going with here
2) Dr.A will tell us after if the rim had tumor, and if it did, that's what he goes after first
3) We will know more about all of this after the procedure, can't guess here, so that's about it
I'm not afraid, except I'm a little freaked out like I said about this thing on my head, so other than that I'm good to go, and lets get it done already!
Karen is awesome, and she explained everything and took us on a little tour.
This way I have an idea of what to expect and if I had any questions could ask and so on.
She asked, "do you have any questions?" umm yes, will I be sedated? I sound like a druggy I know, but I am a little freaked out about my stylish hat that gets screwed into my skull, I guess that's their version of a SKULL CAP. uhh right!
So yeah, back to that whole process. . .
I come in at 6:30 am, and get to have an adivant, then I meet with Dr. C my neuro surgeon, who will put some numbing cream on my head, then some kind of numbing injections, that will burn, and cause bumps on my head, then she screws this thing into my head. , on the front part of course.. . .why do they put this contraption on you ask? so so when I go into the MRI machine, it has a way of giving them markers, so they can map and measure so they know where to direct the 200 laser beams. seriously!
Ok, so the Halo is on my head..(not the cute little oh look an angel halo) but a Frankenstein monstrosity, maybe after they put it on, I'll have to get really dramatic and walk with my hands in front me and say..MMMMmmm ( a girls got o have some fun, right?)
Ok, then they put me in an ambulance, and I go up to the hospital, hey they don't want me walking through the parking lot like that, I could draw attention, and yell help, look what they are doing to me!!, so then the MRI and then the little ride back down the hill, and there I wait for them to map out the big plan.
And oh, by the way, bring a little snack. . .I could be waiting quite a while for them to get their neuro surgeon, neuro physicist and Radiation Gamma Knife heads in agreement.
Ummm yeah lets get this right please it's my brain we are messing around with here!
Then, oh yeah the best part, they pop my head into the helmet things, and you are locked in with your head kind of suspended and it's kind of like an MRI machine except only the top of the head goes in, and no noise.
So I can bring a CD or she can play something that she has. . and the best part?? this only takes 20 minutes.
Then I rest and then go home and I'll be tired, but should be good to go the next day.
Now for those of you with inquiring minds and are asking well do they get everything, what exactly happens, and so on. . .
Well, we won't really know a lot of this until:
1) We have the MRI that morning to see how big the cavity it...my hope here? it's 3.5 cm or less, that way I don't have to do this again in three months. . .so that's what I'm going with here
2) Dr.A will tell us after if the rim had tumor, and if it did, that's what he goes after first
3) We will know more about all of this after the procedure, can't guess here, so that's about it
I'm not afraid, except I'm a little freaked out like I said about this thing on my head, so other than that I'm good to go, and lets get it done already!
Monday, June 21, 2010
It's. . . .
about time! I've finally got my Gamma Knife appt set for 6-30-10 YAY!!
Wed go to meet the nice nurse, and go over what ever it is we are going to be doing.
I guess I'll ask her about the globe on my head and the drugs I'll be wanting. :P
Does that sound bad??
Human pin cushion tomorrow, but I can handle that.
Ok so here we go, and I'm feeling good and ready to get this crap out of my head once and for all.
And we will know exactly what is going on.
Wed go to meet the nice nurse, and go over what ever it is we are going to be doing.
I guess I'll ask her about the globe on my head and the drugs I'll be wanting. :P
Does that sound bad??
Human pin cushion tomorrow, but I can handle that.
Ok so here we go, and I'm feeling good and ready to get this crap out of my head once and for all.
And we will know exactly what is going on.
Sunday, June 20, 2010
Monday. . . .
I should get the real date for the Gamma Knife.
It was scheduled for the 8th, but now we are moving it to the week before, so I am thinking it will be the 1st or 2nd since they only do this on Thursday and Friday.
I want to make sure they have me scheduled with the"nice " nurse too!
Blood tests on Tuesday, and then at some point I have to go in to go over what we do during the procedure.
Big Gulp, and we aren't talking about 7-11 here.
I'm just hoping they kind of put me out because I don't know how i'm going to feel with some giant metal halo screwed into my scull. . .lets see. . .ummm. . .shall we dance, it's like a humpty dumpty thing but on my head, right?
Like when Dr Evil had that giant globe on his head and he was falling all over the place from the weight of it.
Yeah, sit me down and put me out please.Then they are going to snap me into this giant old fashion hair dryer thing, again, sedatives please.
I'm not thinking this is going to be bad, and I'm not afriad, it's just more of the unknown factor, and at this point I can almost fall asleep in an MRI machine, I'm just not sure how things thing on my head will fit in one, since we have to do the MRI with it on.
I don't get that part either.Well i'll know soon enough.
And as far as the eye goes, still some eye wierdness with my right eye, so it will be interesting to see what Dr. H has to say on the 28th
It was scheduled for the 8th, but now we are moving it to the week before, so I am thinking it will be the 1st or 2nd since they only do this on Thursday and Friday.
I want to make sure they have me scheduled with the"nice " nurse too!
Blood tests on Tuesday, and then at some point I have to go in to go over what we do during the procedure.
Big Gulp, and we aren't talking about 7-11 here.
I'm just hoping they kind of put me out because I don't know how i'm going to feel with some giant metal halo screwed into my scull. . .lets see. . .ummm. . .shall we dance, it's like a humpty dumpty thing but on my head, right?
Like when Dr Evil had that giant globe on his head and he was falling all over the place from the weight of it.
Yeah, sit me down and put me out please.Then they are going to snap me into this giant old fashion hair dryer thing, again, sedatives please.
I'm not thinking this is going to be bad, and I'm not afriad, it's just more of the unknown factor, and at this point I can almost fall asleep in an MRI machine, I'm just not sure how things thing on my head will fit in one, since we have to do the MRI with it on.
I don't get that part either.Well i'll know soon enough.
And as far as the eye goes, still some eye wierdness with my right eye, so it will be interesting to see what Dr. H has to say on the 28th
Thursday, June 17, 2010
This . . . .
really pisses me off.
9:00 am I call this am for Gamma Knife appt, and the person I usually speak to is not avail, but I'm told she's busy working on scheduling, and will call me back.
3:15 no call so I figure I will call back and see if it's set up.
I get the same woman on the phone that proceeds to me that the scheduling person is not there and that she's been busy re-scheduling other patients, working on insurance problems, basically telling me that all of these other things are way more important than me and what am I anxious about.
WTF!
What am I anxious about? I have some tumor in my head and I would like to get this going, and she tells me well you had surgery, and we have to let the area shrink I say, I hope this doesn't sound bad, but I don't care about all this other crap she just told me, I want to know when I am having this done so I can move forward.
What a bitch, then I ask her who she is and she tells me I'm one of the nurses!
Are you kidding me, if she's one of the nurses than I certainly don't want her nursing me because what a cold fish.
Right now, with this, yeah it's all about me and what is going to make me feel better? having a date set for this procedure.
I told her Dr. A told me to call today and get the date, and she says, "well the Dr's always want things done on their schedule and it just doesn't work that way" this lady should not be on the phone, and if she is she should be sympathetic and kind, say something like this, "I know this is a difficult time, and we are working on it. so and so is gone for the day but feel free to call her tomorrow if she hasn't called you first", "everything is going to be ok!, anything else I can help you with right now?"
Umm, that's what I would have said, not more of this, well so and so has been here since early this am doing this, we've had to move patients around and we only do Gamma on Thurs and Fri.
I wonder if Dr. A would like to know this, but then am I starting a war here?
Do I say something?
Am I crazy?
Yeah I'm a little hyped on steroids as my dose increased, but I don't know,
I don't think I'm too out of line here!
9:00 am I call this am for Gamma Knife appt, and the person I usually speak to is not avail, but I'm told she's busy working on scheduling, and will call me back.
3:15 no call so I figure I will call back and see if it's set up.
I get the same woman on the phone that proceeds to me that the scheduling person is not there and that she's been busy re-scheduling other patients, working on insurance problems, basically telling me that all of these other things are way more important than me and what am I anxious about.
WTF!
What am I anxious about? I have some tumor in my head and I would like to get this going, and she tells me well you had surgery, and we have to let the area shrink I say, I hope this doesn't sound bad, but I don't care about all this other crap she just told me, I want to know when I am having this done so I can move forward.
What a bitch, then I ask her who she is and she tells me I'm one of the nurses!
Are you kidding me, if she's one of the nurses than I certainly don't want her nursing me because what a cold fish.
Right now, with this, yeah it's all about me and what is going to make me feel better? having a date set for this procedure.
I told her Dr. A told me to call today and get the date, and she says, "well the Dr's always want things done on their schedule and it just doesn't work that way" this lady should not be on the phone, and if she is she should be sympathetic and kind, say something like this, "I know this is a difficult time, and we are working on it. so and so is gone for the day but feel free to call her tomorrow if she hasn't called you first", "everything is going to be ok!, anything else I can help you with right now?"
Umm, that's what I would have said, not more of this, well so and so has been here since early this am doing this, we've had to move patients around and we only do Gamma on Thurs and Fri.
I wonder if Dr. A would like to know this, but then am I starting a war here?
Do I say something?
Am I crazy?
Yeah I'm a little hyped on steroids as my dose increased, but I don't know,
I don't think I'm too out of line here!
Subscribe to:
Posts (Atom)