Jury. . . .

duty, not this year.
Although I wouldn't have minded serving, but the one the courtroom I went up to, the trial starts next week, and goes until August 27.. Are you kidding me?
I had to do the obvious thing there.
Oh well, maybe next time!
So Dr. A yesterday. . .
We talked about cutting down on my steroids, and he took me off of the anti seizure med, (that's a YAY!)
The steroid taper, here I go again, and he said that's probably whats affecting my UC, well I say a F ME on that front.
And the taper, well this will really make me tired, so I am going to have to play around with it.
OK, I want to be tired for a change, like the gamma didn't make me tired enough.
Like I've said before, I know how to have all of the fun.
I will need to have another brain MRI in about 6 weeks, so I guess I'll try and get that scheduled since he gave me the RX.
I just have to make sure the blood god is at Rolling Oaks that day, as he won't hurt me.
Never thought I'd have so much pain and swelling from blood draws. My left arm looks like a pin cushion from last Friday.

right. . . .

now, I'm not having any fun.
Yesterday, out of the blue. . .I had a flare up.
Yeah, that would be my colon talking talking to me now, saying hey, don't forget about me, I've been quiet for almost a year, it's time to wake up and have some fun. . . . or for me some pain, some bathroom time, some I'm exhausted and yeah some dehydration.
I mean, why not spread it all around?
Last year with chemo, to be specific TAXOL the drug from hell, I had a major flare up, but really that wasn't a legitimate one, so now I get a little more fun! woo hoo
The good times just never stop!
Well, I'm on my way to Dr. A, (liking that rhyme) and shall see what the word is on the brain front. Kind of funny actually, brain, butt, one end or the other. . .
That's me being funny.

ok. . . .

swelling. . . so, I go to the Dr. and she takes some blood, although I have to say, it was questionable to me as to why.
We called the nuero, he said he isn't really in charge of my meds any more, but Dr. A is.
My primary did not want to give me any kind of diuretic, just defer to the Gamma Rad. Onc that I will see on Monday. (Dr. A.)
Limit your fluids and don't eat any salt!
Give me a break really?
Today the swelling is better, so honestly what the hell is going on??
And about the blood thing, while I'm on a slight rant. . .(Leslie, remind you of old times?)
I can't have any blood drawn, or BP on my right arm, so only on the left, now every time and mean EVERY time I have blood dawn, I am dealing with pain and swollen veins.
I put ice on my wrist went I got home yesterday, yeah love those wrist draws, it's not horrible but it is bruised, and the vein in the bend of my arm, where she started to take blood from, (notice I said started??) humungo bruise and my arm hurts.
The only person, and I mean ONLY person that can take blood and not hurt or bruise me? That awesome guy over at Rolling Oaks, but it's not a lab :(

My. . . .

ankles and feet are swollen.
What is this from?
Going to the Dr today, that is once we figured out WHO my Dr is.
Seems like no one knows??? Or wants to treat me???

ummm....

how on earth does this dried phone work? talk about feeling stupid

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Ummmm. . . .

it's Thursday, what a long week.
Still feeling tired, kind of strange I should have gotten past this tired thing by now, (or at least I thought I would be past this now)
Need some time off, but not like next week..Dr week, like a vacation.
What's that?