Friday, February 24, 2012

IT. . . .

Starts all over again...
Body Scan next week and then brain MRI in about a month.
See how things look after being off steroids.                                              
Saw my Onc today and she also suggested that there is
a low dose diuretic that may help reduce swelling in my head,
and that might help with the nausea..
Ah hello, why hasn't anyone else suggested this??
I'm just having a fucking grand old time here.
Not my usual cheerful self at this point and I'm just not feeling it.
I'm not trying to have a pity party here, but I feel broken,
and I feel like shit most of the time.
After the 2 seizures, things really changed, got off steroids
and mostly things are better, but I have my days.
I still can't really make plans with friends because how I feel changes
from hour to hour, and that really sucks,
I feel isolated and that makes me sad.
It's kinda like whats the point, so I don't ask anymore and then at least,
I'm not a flake that cancels all the time.  
I know this too shall pass, but I'm kinda getting impatient over here!

Friday, February 17, 2012

SO. . . .

Today is the first day in a long time that I actually feel pretty good.
Although somewhat of a cluster fuck.  I went to my Dr. to have blood drawn, (really convenient) Cindy is really good at getting my veins as they suck big time.  One of my Dr's. thinks that my keppra level is too high and that may be causing all of this nausea, so lets do a blood test and check the level, easy right...WRONG  Requires a special tube that my Dr doesn't carry.
I offer to drive over and get the right tubes to help out, the guy at the lab didn't want to give me the tubes...fucker! I persuaded him to give me the vials..ha ha, go back to my Dr's. office then we couldn't get my veins to produce enough blood, so we tried another vein and someone else took my wrist...yeah, I'm the human pin cushion.  My veins suck and I really can only use my left arm, hand, wrist...lucky me my wrist..... so long story short....they get almost 1/2 of a tube filled, then maybe 1/4 of another.  I feel bad because these veins are so tough...Oh well I am hoping we got enough so we can get the levels and find out what the hell is going on.
Thank you Cindy and Denise!!!

Wednesday, February 15, 2012

NOT. . . .

Too much going on.  Still waiting for effects of steroids to go away, I'm still bloated, not crying as much so hopefully this crap is getting out of my system.
Waiting for news of when I'm having my next full body scan, guess it just never really stops.
My breast is hurting less but surgery site still sore, guess that's to be expected...
Well that's it for now.... ye ha

Thursday, February 9, 2012

GOOD. . . .

News, the tumor was benign.
Had surgery last Friday and I will have a tiny scar and honestly not too much discomfort although it still hurts.  Does that make sense??  Oh well. . . .
Still feeling some effects from the roids I've stopped taking.  face and neck still swollen, and I still cry at the drop of a I'm like, when the hell is this gonna stop and when will my face return to normal ??